How to drive change in an organisation – tip one involve people from the start


Cystic Fibrosis Trust

“Back in 2013, we wanted ideas on how to celebrate the Trust’s upcoming 50th Birthday. We asked Lucy (in partnership with Revolutionise) to help us. They ran a workshop that included people from all areas of the organization including finance, research, fundraising, brand, digital, a trustee and someone with cystic fibrosis.

When asked how everyone felt about the Trust being 50, Emma, who has cystic fibrosis, simply said that she was jealous. Suddenly, we realized that the Trust’s special birthday wasn’t a time for celebration, that whilst there had been progress in treatments, the hard truth is that people with cystic fibrosis lead difficult lives managing their condition and still die too young, with many not expecting to reach their 50th birthday.

The resulting campaign from the workshop was ‘Cystic Fibrosis is no party – we wont celebrate being 50 until everyone can’.

Cystic Fibrosis No Party

We also realized that we had to step up our activity to raise more money, to fund more research, deliver more clinical care as well as provide more information and support services to help more people affected by CF.

Through a programme of workshops, training and coaching Lucy helped the senior team to connect everyone in the organization to their role in achieving the Trust’s mission – fighting for a life unlimited for everyone with CF.

Now as an organization, all teams are aligned behind our mission and renewed ambition and are clear on their role in achieving it.  We are embarking on a transformational fundraising drive. We are for the first time actively working in partnership with the CF community to innovate products and services that will better meet their needs. We still have a way to go, but the organization is now in a very different and better place and entirely focused on the day when everyone with CF can live a life unlimited.”

“To drive change everyone has to be involved from the start. The whole organization, and most importantly people with CF and their families, must agree on and be inspired by their role in achieving our mission. Lucy was fantastic at making sure everything we did came back to putting people with CF at the heart of our work.”

Oli Lewington, Engagement Director, Cystic Fibrosis Trust

"It takes a lot of bravery to lead a step change in ambition and you need brave teams to support you. Lucy was a critical friend who supported senior managers and kept us focused on the big picture and the importance of our purpose especially when we had to make tough decisions."

Iain McAndrew, Director of Engagement and Income Generation, Cystic Fibrosis Trust

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